I am the mother of children and Grandchildren with Epidermolysis Bullosa EB. I would use this platform to spread the word about this condition, the way it affects my life with children who are not badly affected and bring forward worse case conditions. Graeme Souness is working with BEBRA to raise awareness. I have done a rotary club as a tester and the members said that it was enjoyable and informative with laughter and tears!