Talk about the condition EB. Epidermolysis Bullosa. Small Charity Called DEBRA. Effects on the speaker personally because of children and grandchildren with the condition. also work being done by the great doctors at Great Ormond Street. Lots of light moments as well as some distressing ones especially for sufferers with severe EB. Graeme Soanes one of the great ambassadors.
Views: 26 | Enquiries: 0I am the mother of children and Grandchildren with Epidermolysis Bullosa EB. I would use this platform to spread the word about this condition, the way it affects my life with children who are not badly affected and bring forward worse case conditions. Graeme Souness is working with BEBRA to raise awareness. I have done a rotary club as a tester and the members said that it was enjoyable and informative with laughter and tears!
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