Living with Chronic Illness — Lessons from a Rare Condition
Pauline O'Connor
- Regions:
- Hertfordshire, London
- Notice Period:
- Emergency (maybe less than one week's notice)
- Type:
- Professional approach
- Fee:
- Paid: Fees: In person: £50 up to 1hour + travel (negotiable). Online £40 up to 1 hr Please note: these fee
- Category:
- Health
- Updated:
- 3rd November 2025
- Tagged:
- Health | Patient Stories | Rare Disease | Advocacy
"What a rare genetic condition taught me about persistence, nutrition, and self-advocacy."
A rare disease patient’s insight into navigating healthcare, advocacy, and daily wellbeing. Relatable to anyone managing health challenges; Pauline pairs medical insight with warmth and humour.
Views: 335 | Enquiries: 0About Pauline O'Connor
Pauline O’Connor is an author, patient advocate, and public speaker based near London. Drawing on her lived experience of mild brain injury and a rare metabolic condition, she shares practical insights into resilience, health, and creative recovery. Her talks combine humour, science, and storytelling — offering audiences both information and inspiration.
"Pauline delivered a fascinating and insightful talk... made a very positive impact on the audience."
Fees: In person: £50 up to 1hour + travel (negotiable). Online £40 up to 1 hr Please note: these fees support my charity and patient group work.
Patient groups (travel expenses only)
As part of her commitment to assisting brain injury survivors and advocating for others with PKU, Pauline collaborates with organisations like the NSPKU, ESPKU, and Headway in their patient programmes.
Send a message to the speaker
If you are interested in this talk and wish to contact the speaker, please complete the following form: