My talk weaves in our family's personal story with this illness and explains:
My Mito Mission is a charity born of need...
In 2010 our 21 year-old daughter became ill and it was suspected then confirmed to be mitochondrial disease. Mitochondrial disease, or mito for short, is little-known and yet one of the most common genetic illnesses affected around 1 in 5000 people.
With no support available, our family and friends set about creating our charity in 2017. We raise awareness, support and funds for research and support affected families around the UK to run personalised 'missions' helping to highlight our cause.
When Emma died unexpectedly soon just prior to the charity's launch, we began 'Emma's Mito Mission' with extremely heavy hearts at her funeral and I have since devoted myself full-time to driving the charity forward and raising awareness.
Talks to groups are amongst my favourite ways to spread the word and I promise you a very interesting, informative and moving talk, enhanced with visuals and images to bring it to life. Thank you.
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